the type of inflammation seen in LC and ME/CFS happens at a subcellular and tissutal level, not systemic, so routine blood tests don’t get it. IVIG are usually well tolerated, we use it since newborn period. Fever and headache are commonest side effects
What would be your proposal to try regarding the inflammation?
either low dose anticoagulation, or IVIG, or biological agents like JAK inibhitors or rituximab
Many thanks
We think that our son has an inflammatory issue although CRP is not high
Because we see that Ibuprofen makes him to sleep better and feeling better the next day
We tried Aspirin for a few weeks but haven’t Seen an effect
Regarding IVIG: privigen for example? What negative effects could happen?
the type of inflammation seen in LC and ME/CFS happens at a subcellular and tissutal level, not systemic, so routine blood tests don’t get it. IVIG are usually well tolerated, we use it since newborn period. Fever and headache are commonest side effects
Many thanks for your reply
Have you used IVIG for some Children with Long COVID / Me/CFS? Have they improved?
Thank you for this article. When will be the online meeting of September about long covid? Thanks a lot!